Governments have committed to ensuring that no one is left behind in Universal Health Coverage (UHC) and to reaching the furthest behind first. Yet today, 1.3 billion persons with disabilities continue to experience lower-quality services or find the health and care they need inaccessible and unaffordable. According to the ground-breaking WHO Global Report on Health Equity for Persons with Disabilities, unfair, unjust, and avoidable structural conditions affect persons with disabilities disproportionately and result in poorer health outcomes, and a 10 to 20-year life expectancy gap.
These barriers are compounded for people with Down syndrome and other people with intellectual disabilities who experience worse health outcomes due to stigma, discrimination, inadequate policies, poverty, lack of accessibility, and poor-quality health services. UHC and SDG 3 commitments will not be achieved if health systems are not designed to provide quality information and services to people with disabilities, in particular, people with intellectual disabilities. Yet there is a lack of data on health access and outcomes for people with Down syndrome and intellectual disabilities to address these barriers and health inequities. In light of this, Down Syndrome International (DSI)[3] and Humanity & Inclusion have launched a global consultation on health equity to better understand the challenges people with Down syndrome and people with intellectual disabilities experience in accessing quality healthcare, and provide recommendations to promote more equitable health systems.
HI and DSI have leveraged their complementary expertise and networks to run the global consultation. Humanity & Inclusion (HI) has played a leading role in promoting globally the right to health of persons with disabilities. Working in meaningful partnership with Organisations of persons with disabilities (OPDs) including women-led OPDs, women’s rights organizations, health actors, and service providers, HI’s disability-inclusive approach to health systems strengthening focuses on interventions in health service delivery, capacity building of the health workforce, strengthening leadership and governance for inclusion, and civil societies role in accountability; as well as improving disability disaggregated data in health information management systems. HI is also a non-state actor working in official relations with WHO and providing technical support on disability inclusion in the health sector, including support for the rollout of the Global Report on Health Equity for Persons with Disabilities. Down Syndrome International (DSI) is a member of the International Disability Alliance and has a global network of over 150 Organizations of Persons with Disabilities and their families. DSI co-led the Listen, Include, Respect Guidelines, which consulted nearly 1,500 people with intellectual disabilities and their families in their development.
Title |
Type |
Location |
Deadline |
How To Apply |
U.S. Major Giving
Officer |
Fulltime |
hybrid in Silver Spring, Maryland, or
remote with East Coast hours |
30 August 2024 |
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Country Director - Sudan |
Fulltime |
Nairobi, Kenya |
Before 1 November 2024 |
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